Lived Experience Forum

[greenpea]

Good morning to everyone and Hap-Pea Tuesday to all the Long Ravers @Mazarita @Adge @Zoe7 @Gazza75 @eth @Angels333 @Doglover @cutiepiekitty  and all the others passing by. I am up with the vampires and the werewolves again :p. Who needs sleep when you have a keyboard and a mouse :P.  Wishing you all a super day. Loads of love peaxx

[eth]

Hi @Gazza75 @greenpea @Zoe7 @Adge  and sending hopes that today is one of the better ones for you all.

@Adge  It's sad to hear that your family does not support your brother.  And outrageous what your mother said about his appearance.  Insensitive, to say the least.  Sending you warm wishes.  You have support here.

[Gazza75]

Good Morning @eth , hope you have a good day your side 🙂 

Hi @Adge , I'm sorry to hear about your family not being more supportive and thoughtful about your brother.  I can only say and assure you that the nurses and doctors in the ICU are super amazing and will give your brother all the attention and care in the world.  

[Owlunar]

Wow - there is so much on this thread I don't think I'll get around to answering it - but I have clicked the support button a lot more than usual

@Adge  - I missed what happened to your brother but it must have been pretty horrendous - and what your mother said is outrageous - just because your brother can't see his disfigurement doesn't mean he doesn't know about it

It seems as if he had a terrible accident - I am sorry and wish both of you the best I can - it's great you can support him - the situation sounds pretty terrible

Dec

[Owlunar]

Hi @eth 

Thanks for tagging me into the rave - it keeps me in touch - there are times when I don't seem to spend much time here and other times when I read my phone a lot but don't respond much and then other times when I get around the site - 

I found it hard to get back into the swing of everything after two weeks away - my medication was less when I was away because there is one item I can only get from the doctor - and I missed that - I am still having the flare I could do without - and I have starting proceedings to find anothe pain specialist - I have to organise an MRI - let's not do it all at once - that would be overpowering

I hope you find your muse too - I think I had one - I think it must have been an owl - a long time ago I wrote a lot of short stories and really insightful poetry - when I moved here from the flat where I wrote so much a managed to lose a lot of stuff - I just never finished the job myself and stuff was left behind - that was nearly 16 years ago - how time flies and how much of it I have behind me

But it has been a worthwhile life - worth writing about certainly - I still have some of those stories - I have my favourite one - The Penultimate Straw - that's the second last straw - the most important straw - noticing that one can save us a lot of angst

So I hope that Muse finds it's way back to you - we all need inspiration - it's helps us build a record of the time we have been here

Dec

[Owlunar]

I am looking forward to daylight saving too @Zoe7  - I enjoy taking a walk around sunset - I find that an excellent time to be outside in the fresh air taking time for exercising my mind and my body - sometimes I might not have any idea what I was thinking about but I must have been enjoying myself - I always feel well after that

When I was in Cairns a took walks on the Esplanade late in the afternoon - a lot of people would be about then - it's a great place for people-watching - late in the day seems to be the best time for me - and I always feel as sense of jet-lag when we put the clocks forward or back - but forwards is harder - in Victoria the clocks are put forward on 6th of October which is in two weeks

It seems your support role with students needing one on one time is not exciting as class room teaching - I did a lot of private tutoring and some of those kids really didn't want a tutor - it was something their parents thought up - I found those episodes stressful but the up-side of my teaching was the kids that were stimulated and some of those are still in my minds all these years later

All the best Zoe

Dec

[Owlunar]

@greenpea 

Just sending a message to the Pea - I hope you are able to reorganised stuff now you know you can't sit on your hands and wait for things to happen

I get it - I am doing something similar - after some conflict with my pain specialist I am in the process of organising myself into a different one in the private sector - I am trying to get an appointment to have an MRI to begin with - not easy - they changed their phone number and now the line is busy but this clinic is very close to home - which is easier than travelling a long way everytime

And I have to find a psychologist - strange that I should need one simply to write me a letter to say I am stable - which I am - but it's something that I will need when I see a new person at a different clinic - my past seems to haunt me - once I got the idea my son's troubled life was over and all the things that went bad at the same time were over and I couldn't change a thing I accepted it and so much of the angst went away

But alas - people know of it - and it follows me around - and altough I know I have settled my mind about it all I know I can still be triggered and always will I guess but the truth remains that we can never change the past and it does stick like bunched up sticky tape on our fingers when we are wrapping Christmas Presents

That settled I will be organising myself into a pain specialist - I know the person I am thinking of - I was his patient in the past - he was a kind and understanding person

All the best with your on-going projects Pea - I wish you the best

Dec

[saturnzoon]

@Owlunar @Mazarita @Gazza75 @eth @greenpea @TAB @Adge @Former-Member @outlander @CheerBear @BlueBay @Meowmy @Ant7 @Smc @MDT @Maggie @Bill16 @Angels333

My 1son sent me a text yesterday to say his girlfriend had a baby boy and has her last name, I was not invited to see The baby's birth and my son he doesn't know if I wil get to see the baby, he said his girlfriend doesn't like coming down to us cause where in a lower class, and said sometimes I might be able to see him but he doesn't know when,I have never met her family and have only seen her once, so I'm a bit down since yesterday and there's nothing I can do.

[Adge]

Thanks @Owlunar Much appreciated.

My has been blind since birth, & is intellectually disabled.

He caught himself on fire, whilst cooking (11 days ago) - he's been in ICU in a burns unit, since then.

Adge

[TAB]

Maybe he’ll grow up one day @saturnzoon