07-10-2015 07:14 AM
My daughter has just been admitted to a youth menatl health unit. They are now saying it is likely she has Bipolar 2 and are going to change her meds to include a different anti-depressant and an emotional stabaliser. My concern is that now she is 18 the Dr doesn't have to discuss these things with me and I'm not sure my daughter will ask the right questions. The emotional stabaliser is apparently a medication used for epilepsy but when I researched it the side effects can include making anxiety, depression and suicidal thoughts worse! These are the things we are trying to fix! Does anyone have any experience/knowledge of these type of medications to either alleviate my fears, alert me to warning signs that things may be going bad or questions that should be asked of the Dr prescribing them. I do have complete faith in the program offered at this unit as my daughter has been before and there therapy sessions have proved helpful in the past, I just cant get past the list of side effects!
07-10-2015 08:32 AM
Welcome to the forums. It can be very difficult when your child turns 18 and losing the ability to get info from treatment providers. Your daughter can give consent for information to be shared with you or try and maintain open discussions with her about her treatment and her illness. I'm sure you will find some helpful members here as well as others stories of how they have managed.
All the best,
07-10-2015 10:45 AM
Untethered- sounds to me like there are two main issues here - 1. Concerns about the appropriateness and side effects of prescribed medication; and
2. How to ensure that you remain informed and/or your daughter is able to receive appropriate care where her best interests and well-being will be maintained.
I do not know a great deal about mood stabilisers except that they are routinely used with Bipolar Disorders and Schizo-Affective Disorder, and that side effects can also involve physical health issues, which need to be monitored closely, depending on the specific drug prescribed.
As it sounds like you are concerned about this and your daughter is still only young, I would suggest that you either sit in on a session with your daughter's doctor (with her consent) or otherwise request a "family meeting" with the doctor or treating team so you can discuss these issues and ask the questions that you believe to be important to obtain answers for. This may also be important for you in order to consider the reasons why this particular drug may have been prescribed over other alternatives (i.e. issues with compliance with oral medications where relevant, previous medical history, improved efficacy of a particular drug relative to other existing medications).
Otherwise, you may want to discuss these issues together with your daughter and write down a list of questions that she can ask the doctor herself.
It is understandable that you are concerned, although issues of patient confidentiality are always important. From my experience, you as an immediate family member would be crucial either as a carer or as a primary support for you daughter in the community and do have a right to be kept informed in order to ensure that she stays well and engaged with services.
When inpatient units have used the old line about confidentiality with me regarding my family member to withhold important information, I have found that when I make it clear to them that she is severely impaired (which is already obvious) and that I am most likely going to be the person left responsible for her care and support upon discharge, AND that I am seeking to ensure her best interests, they usually relent to a degree and will be willing to discuss issues that are important regarding her treatment and recovery.
In outpatient and community settings, this may not be as clear to professionals. Due to her age, they may possibly be concerned about supporting her capacity to establish her own independence and make informed decisions regarding her treatment. It is important where possible to try and establish a positive partnership with your daughter's care providers and maintain an open, trusting relationship with your daughter in order that you will know the signs that she is not doing well and when she requires further help, and to know how you can best support her.
13-10-2015 07:12 PM
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